Monday, November 16, 2009
Much better
My calcium is finally back up at the bottom end of normal and I feel so much better. Not 100% but much much less tingly, fewer muscle cramps and less twitchy.
Saturday, November 14, 2009
Long time no type
My computer has been on the fritz and I haven't been well, but hopefully I am back now.
All in all, things have been hard. My calcium has been incredibly unstable. My son has been sick I have been sick and I am waiting for things to get better.
I was on antibiotics for my Crohn's for a month, finished and a week later I got cellulitis from my flu shot, finished antibiotics for that and end up with strep within three days. I hope this is the last of the antibiotics for a long long time!!
My calcium was in the low 7s for three weeks and only IV calcium was bringing it up. Now it is still low, but it seems that now that I am on steroids for my Crohn's I am absorbing it better when I take it orally. My levels now are in the low 8s and high 7s I am a lot less miserable.
My thyroglobulin is up a bit, but hopefully it doesn't mean anything, since the radiation should still be working.
I see oncology Monday.
All in all, things have been hard. My calcium has been incredibly unstable. My son has been sick I have been sick and I am waiting for things to get better.
I was on antibiotics for my Crohn's for a month, finished and a week later I got cellulitis from my flu shot, finished antibiotics for that and end up with strep within three days. I hope this is the last of the antibiotics for a long long time!!
My calcium was in the low 7s for three weeks and only IV calcium was bringing it up. Now it is still low, but it seems that now that I am on steroids for my Crohn's I am absorbing it better when I take it orally. My levels now are in the low 8s and high 7s I am a lot less miserable.
My thyroglobulin is up a bit, but hopefully it doesn't mean anything, since the radiation should still be working.
I see oncology Monday.
Tuesday, September 22, 2009
I am black!
My computer died, but I am back now.
I seem to have strep again.
I am tired, but able to to more before I am totally exhausted.
My labs are a bit more stable.
I seem to have strep again.
I am tired, but able to to more before I am totally exhausted.
My labs are a bit more stable.
Friday, August 28, 2009
Something is wrong when one of your medications costs more than your family food budget for the month
the food you are allowed to eat is totally garbage and you know you should do as the doctor ordered but are too tired to care...
Quinoa tastes good but might as well be poison. I really only had a little, but heck, that serving was enough to panic my PCP into calling the endocrinologist and nephrologist to make a new game plan. :blush:
I have been bad, really bad. I am sick. After radiation, on antibiotics for strep, I am tired. I want cheese. I want WHOLE grains. I want potatoes. I want fish. I want seeds and grains that aren't totally processed and bleached. I want cream of tomato soup. I want a granola bar.
This officially sucks and I don't want to be stuck eating garbage for the rest of my life and taking pills all.day.long.
The problem is, I can't just forget it all and bury my head in the sand. The human heart is a calcium pump and needs calcium within a narrow window to pump properly. Ignoring the problem is dangerous. My body doesn't regulate calcium or phosphorus at all any more. Not only does my diet mess everything up if I am not careful, any type of stress or illness causes my calcium to plummet.
This officially stinks.
Quinoa tastes good but might as well be poison. I really only had a little, but heck, that serving was enough to panic my PCP into calling the endocrinologist and nephrologist to make a new game plan. :blush:
I have been bad, really bad. I am sick. After radiation, on antibiotics for strep, I am tired. I want cheese. I want WHOLE grains. I want potatoes. I want fish. I want seeds and grains that aren't totally processed and bleached. I want cream of tomato soup. I want a granola bar.
This officially sucks and I don't want to be stuck eating garbage for the rest of my life and taking pills all.day.long.
The problem is, I can't just forget it all and bury my head in the sand. The human heart is a calcium pump and needs calcium within a narrow window to pump properly. Ignoring the problem is dangerous. My body doesn't regulate calcium or phosphorus at all any more. Not only does my diet mess everything up if I am not careful, any type of stress or illness causes my calcium to plummet.
This officially stinks.
Thursday, August 27, 2009
Antibiotics are good
phosphorus is not.
My PCP is a doll. She got my lab results yesterday, called the nephorologist and endocrinologist and made a plan and then called me.
Honestly if she had called me first I would have told her not to worry too much. Between the wedding and all of the post wedding parties including whole grains and healthy food like quinoa (which I only had a bit of, but it all adds up) I am sure I did it to myself quite honestly and if I am good about the diet my phosphorus level should go back down.
All in all, I feel like a tingly hypocalcemic mess. Between the high phosphorus, being sick and I think I forgot to take one set (out of seven) of meds two days ago, my nervous system is haywire. I am tingly and twitchy and have no energy.
I am praying hard that I feel better soon.
The kids go back to school next Tuesday. Today we are covering books and making challah and cookies. :) It has to be a good day no matter what. We need some nice summer memories.
Liba
My PCP is a doll. She got my lab results yesterday, called the nephorologist and endocrinologist and made a plan and then called me.
Honestly if she had called me first I would have told her not to worry too much. Between the wedding and all of the post wedding parties including whole grains and healthy food like quinoa (which I only had a bit of, but it all adds up) I am sure I did it to myself quite honestly and if I am good about the diet my phosphorus level should go back down.
All in all, I feel like a tingly hypocalcemic mess. Between the high phosphorus, being sick and I think I forgot to take one set (out of seven) of meds two days ago, my nervous system is haywire. I am tingly and twitchy and have no energy.
I am praying hard that I feel better soon.
The kids go back to school next Tuesday. Today we are covering books and making challah and cookies. :) It has to be a good day no matter what. We need some nice summer memories.
Liba
Monday, August 24, 2009
Sunday, August 23, 2009
Sunday update
It was nice seeing everyone and spending time with family. I am glad we went.
The kids are desperately overtired though and so am I.
Our zoo membership is up in two days and I am not seeing us use it again before then. Getting grumpy overtired kids out into the sunshine and keeping them busy would be a great idea, but I am not up for doing it.
Zeidy Siegal came by this evening. It was great to see him. He is seeming really old all of the sudden. I guess it makes sense, being a great grandfather to children old enough to get married would do that. If we had gone to the zoo we would have missed his visit, so it is all for the best!
My calcium is down again, my rbc and hgb are down. My lymphocytes are still low but up a bit. My throat hurts. Maybe it is a virus. Maybe I am just overtired.
The kids are desperately overtired though and so am I.
Our zoo membership is up in two days and I am not seeing us use it again before then. Getting grumpy overtired kids out into the sunshine and keeping them busy would be a great idea, but I am not up for doing it.
Zeidy Siegal came by this evening. It was great to see him. He is seeming really old all of the sudden. I guess it makes sense, being a great grandfather to children old enough to get married would do that. If we had gone to the zoo we would have missed his visit, so it is all for the best!
My calcium is down again, my rbc and hgb are down. My lymphocytes are still low but up a bit. My throat hurts. Maybe it is a virus. Maybe I am just overtired.
Subscribe to:
Posts (Atom)
