if things are really okay.
Today I napped in the morning, which seems to make a huge difference in the way I feel and my ability to function. I made mashed potatoes for the potato blintzes and mixing up cheese for the cheese blintzes in the afternoon and turned all of the crepes into blintzes. It feels good to have something in the freezer, ready for Shavuos.
I am not terribly numb, tingly or having many muscle cramps. I am exhausted, but doing okay.
It is really rare that the IV calcium helps for this long. The last IV was Sunday, so it has been most of a week! I am starting to have hope that feeling reasonably well will continue. I could happily live this way. I am not doing any where near as well as I was a year ago. On a good day I am functioning at about twenty percent of my previous capacity, but twenty percent is something and I am happy to be there.
This blog is for me but you are welcome to listen in if you would like. I am a busy mommy to some adorable but medically involved children, dealing with everything that came along with advanced thyroid cancer. I thought my plate was full before. Then I found out that my plate was really a serving bowl.
Thursday, May 13, 2010
Two in a row!!
I am liking this trend. Today was another good day B"H.
The kids and I made crepes today and IY"H I will make them into blintzes tomorrow. We ended up with a lot of cucumbers from a neighbor and made more pickles. I got a nap.
I spent the day looking for good blintz filling and cheese cake recipes, using Israeli ingredients. I think I found a good cheese cake recipe and am going to make the blintz filling with a cottage cheese base. The kids like potato blintzes more than cheese, so we will be making some of those as well IY"H.
It was cooler outside today, so we were able to turn off the air conditioning and open the windows. B"H another thing to be happy about.
The kids and I made crepes today and IY"H I will make them into blintzes tomorrow. We ended up with a lot of cucumbers from a neighbor and made more pickles. I got a nap.
I spent the day looking for good blintz filling and cheese cake recipes, using Israeli ingredients. I think I found a good cheese cake recipe and am going to make the blintz filling with a cottage cheese base. The kids like potato blintzes more than cheese, so we will be making some of those as well IY"H.
It was cooler outside today, so we were able to turn off the air conditioning and open the windows. B"H another thing to be happy about.
Tuesday, May 11, 2010
And a Good Day.
My cleaning lady came this morning but there was no water because of a water main break so she left (and will hopefully come back tomorrow) and I was able to go back to sleep B"H. It was exactly what I needed. Getting out may boost my spirits but exhaustion from getting out makes it harder to keep my smile on.
My afternoon was full or pickle making, cleaning out the fridge, laundry, reading lots of books with my little ones, smiles, and happiness. My evening was spent at parent teacher conferences where I was proud that I was the mommy.
I feel much much better. B"H yom yom.
My afternoon was full or pickle making, cleaning out the fridge, laundry, reading lots of books with my little ones, smiles, and happiness. My evening was spent at parent teacher conferences where I was proud that I was the mommy.
I feel much much better. B"H yom yom.
Good night
Today was a blur. I slept in the morning, was hot and grumpy in the afternoon. I didn't accomplish anything or go anywhere.
My husband was home, on one of his very rare days off, so he took care of the kids and heated up lunch. If you ask him, I was resting.
I like to have something to show for my day, some little accomplishment. When I started posting this I though I would be going to sleep without that.
On deeper examination, and after much thought I realize I was there. I snuggled one little boy when he got home, hot and sweaty, fixed my daughter's ponytail, and okayed freeze pop consumption for them all.
I also pushed them all to clean up, was frustrated that most of the sun hats were missing in action, and got upset when it was well after bedtime and they were still talking.
It wasn't my best day. Hopefully tomorrow there will be more cuddling and loving and less upset. This wasn't the kind of day that I would be happy having for my last.
My husband was home, on one of his very rare days off, so he took care of the kids and heated up lunch. If you ask him, I was resting.
I like to have something to show for my day, some little accomplishment. When I started posting this I though I would be going to sleep without that.
On deeper examination, and after much thought I realize I was there. I snuggled one little boy when he got home, hot and sweaty, fixed my daughter's ponytail, and okayed freeze pop consumption for them all.
I also pushed them all to clean up, was frustrated that most of the sun hats were missing in action, and got upset when it was well after bedtime and they were still talking.
It wasn't my best day. Hopefully tomorrow there will be more cuddling and loving and less upset. This wasn't the kind of day that I would be happy having for my last.
Monday, May 10, 2010
Down and then Up.
My calcium was way down, as my body was telling me, but B"H blood test results were in by two pm. I muddled through my errands in the morning, feeling worse and worse as the day went on. I left for my doctor's appointment as soon as my husband got home and got my IV in time to catch the bus and meet up with my friends.
Getting out was exactly what I needed. B"H I feel much better. I think getting out with friends was as much of a boost as the calcium was. Though I couldn't have gone out without the IV, going somewhere other than the doctor's office was the best possible medicine for my spirit.
B"H the day ended with me feeling much much better than when it started.
Getting out was exactly what I needed. B"H I feel much better. I think getting out with friends was as much of a boost as the calcium was. Though I couldn't have gone out without the IV, going somewhere other than the doctor's office was the best possible medicine for my spirit.
B"H the day ended with me feeling much much better than when it started.
Saturday, May 8, 2010
Shabbos was great B"H
We had wonderful company, three seminary girls who were great conversationalists, helped out and were wonderful with the kids.
Tomorrow I will be going for blood work, going to the post office and bank and hopefully going for IV calcium not too late in the day. I was supposed to get together with some friends in the evening but have a strong suspicion that I won't be ready to leave on time.
Truth be told, I am not up for going unless I get the IV anyway. Even sitting in my recliner my legs are numb, forget any other chair. My whole face, inside my mouth and arms are numb as well. I don't feel well.
I am so tired of my sickness running my life.
Tomorrow I will be going for blood work, going to the post office and bank and hopefully going for IV calcium not too late in the day. I was supposed to get together with some friends in the evening but have a strong suspicion that I won't be ready to leave on time.
Truth be told, I am not up for going unless I get the IV anyway. Even sitting in my recliner my legs are numb, forget any other chair. My whole face, inside my mouth and arms are numb as well. I don't feel well.
I am so tired of my sickness running my life.
Friday, May 7, 2010
Commitment was a bad idea
We have company coming for Shabbos. Three sweet girls are coming. I am too tired to clean up AC's room for them. The cooking is done, but it is hard to see that I spent so much energy just yesterday cleaning.
I am embarrassed to have people coming over.
I am numb and so tired that I can barely even move to type.
I am embarrassed to have people coming over.
I am numb and so tired that I can barely even move to type.
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